Diabetespeaks DiabeteSpeaks is an awareness program for Type1 diabetes told through personal experiences. Millions of stories. One community.

February 19, 2016  

Season 1, episode 13: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. What’s it like to live with a misdiagnosis for six years? In our final episode of season 1, we talk with Jenn, who was told she had type 2 diabetes, when it was really type 1. She talks about what those 6 years were like, and the mixed emotions that came with the proper diagnosis of type 1, and her wish that the psychosocial aspects of living with diabetes were discussed up front. “I was very careful. I would have crying fits after dinner because I was still so hungry and there was nothing I could do. I was happy if I could get my blood sugars below 200. I probably should’ve switched doctors sooner, but I honestly thought it was me doing something wrong, that I wasn’t doing what I was supposed to do and if I just was better about it, it would be better.” Stay tuned and hit subscribe, because season 2 of DiabeteSpeaks starts in spring 2016!

 

00:0000:00
February 17, 2016  

Season 1, episode 12: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. In our interview with Chris, we talk about the sometimes bumpy road that can present itself when managing diabetes in college, how surfing became a passion, and offers some advice on perceptions of life with diabetes in relationships. Host Steve Richert and Chris share their love of climbing and surfing, and understanding the nuances of the roller-coaster of T1D: "Know the difference between fear and panic. And that’s certainly something you encounter in surfing, too, like if you’re in a situation that’s a little more critical than you’re comfortable with. Fear is healthy, panic, no so much. I haven’t figured out how to—with a low blood sugar—not let the fear turn to panic."  

00:0000:00
January 22, 2016  

Season 1, episode 11: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. Steve Richert talks with Adriana about the cultural barriers she faced with her family after being diagnosed with type 1 diabetes, and how her passion for fitness and weightlifting have helped her with diabetes management. In addition, Adriana shares the difficulty of going through periods of time without any insurance and limited access to healthcare, and it affected her A1c. Despite challenges, she finds strength in a positive outlook, and credits the online type 1 community for much of her education about T1D. "About two years ago I got into weights. I realized that I could really control my blood sugar while exercising, and I really liked that.  So I guess I like that I can lift heavy things for a few reps, but I like that I can control my blood sugar. It’s like I’m not even diabetic during that time." 

00:0000:00
January 7, 2016  

Season 1, episode 10: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. In episode 10, Steve Richert talks with Andres, whose parents came to the US from Mexico. Andres talks about family dynamics when cultural barriers are involved, and being confronted by diabetes myths right in the emergency room when being diagnosed with type 1. Three years after diagnosis, he finds a tangible way to take it all into account: "My mom hadn’t thrown away any of the needles because she didn’t know where to recycle them. I was like, 'Hold on to them, because I want to do something with it.' I was going to pour them in the huge pile, and I have every single need that I’ve ever used since I was diagnosed for three years, just so that people can see that it –– it’s tangible. This happens every single day, and has been happening every single day for three years of my life." 

 

00:0000:00
December 17, 2015  

Season 1, episode 9: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. In the second part of the interview with RoseAnn and her daughter Jessica, they talk about the family's participation in the Type 1 Diabetes TrialNet. RoseAnn hoped to learn if any of her other children would be likely to develop it, but instead, learned that she herself will, and talks about what she has learned from her daughter while participating in the prevention study: "I don’t really understand fully how it affects her, and I know that’s coming. So that’s some of the things I think about. Like, when I can see her emotions or I can see how she’s feeling, and I often will think, 'I’m going to be in her shoes,' and it’s scary." 

00:0000:00
December 3, 2015  

Season 1, episode 8: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. Steve Richert talks with Rose Ann and her daughter Jessica about the learning curve of diabetes management, and the challenges of being on Medicaid. Also, a preview into the second part of this interview, where Rose Ann talks about learning she has 4 of the 5 autoantibodies and will likely develop T1D herself. “I’m actually usually very reluctant to tell people that I’m on Medicaid. I’m very grateful that it’s there for me. But I get frustrated with what I can’t do within that, and I think there’s a huge misconception about people who qualify for it.”

00:0000:00
November 20, 2015  

Season 1, episode 7: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. Steve Richert talks with Joan and her son Jeff about the line between ensuring a child’s safety and helicopter parenting. How do both sides react to a reading on the meter? Jeff’s growing self-reliance shows the importance of open discussions, learning together, and allowing room for trial and error. “Science is, is basically trial and error. You have to find things that don’t work that are—in order to find the one thing that does.”

 

00:0000:00
November 5, 2015  

Season 1, episode 6: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. We talk to Darius, who was initially diagnosed with type 2 due to his age. After a career in the military, he talks about adjusting to civilian life and the struggles he faces with the VA healthcare system. "They authorize three strips a day.  That's not enough for me. I look for alternate sources to purchase the extra strips because I am not going to compromise my peace of mind or my safety because the insurance company said three times a day is enough. I can go through their three-day quota in mistakes."

00:0000:00
October 22, 2015  

Season 1, episode 5: DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. In our second half of our interview with Sysy, we learn more about pregnancy and type 1 diabetes, and explore the cultural barriers she's seen in her community and how it can affect diabetes. "I mostly talk to people who are at the bottom of the socioeconomic scale. And you hear criticism of those people every day, but you need to talk to them and see where they live and what they have to say about their struggles."

00:0000:00
October 9, 2015  

Season 1, episode 4,  DiabeteSpeaks is a special project of T1D Exchange and the Glu community--join us and become part of type 1 diabetes research today: visit www.myglu.org. Host Steve Richert talks with Sysy, who shares intensely personal stories about the impact of depression in her first few years after being diagnosed with type 1 diabetes. She talks about how motherhood helped her in that struggle, and what cultural barriers she's experienced with her family about type 1. "I recognized that the depression was actually holding me back from taking care of my diabetes.  And I started to tackle that. And I made goals, like I’m going to check one time a day, because I’m not checking at all. So once would be an improvement.  And then I changed that to two, four. And nowadays I just I check a lot."   

00:0000:00

« Newer Posts - Older Posts »